Golden Slumbers [OC x Lilly] (UPDATED 04/02)
Posted: Mon Jan 21, 2013 1:48 am
TABLE OF CONTENTS
Chapter 1, Part I: See below!
Chapter 1, Part II
Chapter 1, Part III
Chapter 1, Part IV
Chapter 1, Part V
Chapter 1, Part VI
Chapter 2, Part I
Chapter 2, Part II
Chapter 2, Part III
------------------------------------------------------------------------------------------------------------------------
CHAPTER ONE: FAMILY
Amyotrophic lateral sclerosis. It was almost funny - the first headache was just remembering how to spell it. But then came the tests - blood tests, MRI scans, a spinal tap. A seemingly endless series of complicated procedures and formalities that I’d found myself thrown into without any warning.
I’d seen the videos. Read the stories. Everyone told me that they could treat it - that with medication and proper care, they could fight it off. But I know - I’m living on borrowed time. A few decades, tops - and then nothing. First, my toes would shut down, then my feet. Then both my legs. Then it would progress further and further up my body until hitting my vital organs, putting me on life support for the rest of my short life. I wake up with a start in the hospital. The first moments of confusion and disorientation wear off quickly as I sit up. A small bouquet of chrysanthemums lays on the nightstand, along with an envelope crudely addressed to me in purple crayon - “For Yori”. It’s my little sister’s handwriting, and the envelope bulges at its base. Spilling the contents onto my lap, I turn on the lamp just over my left shoulder, examining the spread - two letters, and the same purple crayon that had been used to address the envelope. I unfold the neater of the two letters - crisply folded and written on my family’s stationary.
“Dear Yori, chances are you were asleep when we came by - the doctors said you’d had a long day of procedures. Your friends all miss having you in school, and it hasn’t been easy to stop them short of breaking down the front door! A few girls even came by (your mother didn’t care for them much, but I thought they were lovely! - Dad), looking to check in on you. We’ve told mostly everyone about what the doctors think. Their thoughts and prayers are with you, Yori. It hasn’t been easy for Tomomi. She couldn’t possibly understand the situation; she’s just so young. And she loves you so much. We’ve done our best, but we don’t know how much is getting through. Please be patient with her - it’s not easy for anyone. Your baseball team hasn’t won since you were first admitted, clearly because you haven’t been in the outfield! The doctors think you should be able to leave care in a few days! We’ll have dinner at that Vietnamese restaurant you love so much to celebrate. We love you sweetie, and we’re always thinking of you. Talk to you soon! Love, Mom and Dad”.
I set the letter back on the nightstand. A predictably optimistic letter. My mom and dad were never ones for making me worry, and this would be no exception - they’d tell themselves everything they could to make it all seem alright. They’d tell themselves anything to avoid the unbearable truth - that even in the best case scenario, they would have to bury their son in just a few decades.
I unfold the next letter, written on a piece of printer paper plastered with vibrant illustrations in crayon.
“Dear Yori, How are you? I am good. Mom and Dad say that you are sick. I hope you get better soon. Here is my favorite crayon. I hope it makes you feel better. Don’t put it in a pencil sharpener, my teacher says that’s bad for the sharpener. Love, Tomomi”.
I set it down on the nightstand, on top of the letter my parents sent. Dexterously turning the crayon over between my fingers, I assess the situation. A little sister who doesn’t understand the situation, and two parents who wish they didn’t. Suddenly, the door flies open, momentarily blinding me. A doctor stands in the doorway, clutching a clipboard.
“Mister Kuroki? Hope I didn’t wake you.” I’m too tired to come up with something clever.
“No, no, I was awake. What uh, what can I do for you?”
“Ah,” the doctor begins, tapping the clipboard. “I was just going over your charts. You should be able to go home in a few days.”
“Right, I’d just been reading something like that,” I respond, limply gesturing to the letters on the nightstand.
“Well, while it’s definitely good news, we need to discuss your post-hospital plans.” Post-hospital plans? I hadn’t even considered that anything would change.
“Post-hospital plans?”
“Well, the primary concern is the continuation of your education.”
“I was under the impression that I would head back to school as soon as possible.”
“That’s the plan, but it’s a bit more complicated than that.” His face sours. “Your parents have expressed some... concerns, regarding your return to your current high school.”
“Concerns? What kind of concerns?” I ask, my face contorting in confusion. The doctor briefly averts his eyes.
“Concerns that it may not be the best environment for someone in your condition to attend.”
“Someone in my condition?” The doctor looks gravely at me. His face is stoic - emotionless. The face of a man who has had this conversation a few too many times.
“The fact of the matter is that for a lot of children who develop serious illnesses or physical handicaps, returning to their old school can be traumatic, and detrimental to their education.” My throat is constricting, my face tightening. I know what’s coming, but I’m afraid to hear it. “I recommended you for placement at a high school not too far away from here that’s specially staffed and equipped for people in similar situations.”
“Why wouldn’t I just go back to my old school? Why wouldn’t we just give it a chance?” We. Like I have any say in the matter. “It’s not like everyone would start abandoning me!”
“Yori, your parents just want you to have a normal life.” I clench my fists, doing my best to keep calm.
“A normal life? They want me to have a normal life, so they shuffle me into a school full of people who want to have ‘normal lives’? If they want me to have a normal life, they should let me go back to my friends!” The doctor, sensing my growing anger, does his best to calm me down - visibly regretting coming in so late at night.
“Yori, the truth is that your friends may have a harder time coping with it than you. Nothing’s harder than having to say goodbye to someone every day, and never knowing if that’s the last day you’ll see them. Honestly? If you want to do what’s best for your friends, you’ll go through with this.” I sit, my lungs somewhere between fuming in silence and crying out in frustration. The doctor walks back into the hallway, preparing to close the door. “Yori?”
“What?”
“If you love something, let it go. Yamaku’s not such a bad place, either.” And with that, he slides the door closed. I sit upright for a long time, a wave of emotions rolling over me. Sadness. Frustration. Helplessness. Despite my best intentions, all I can think about is how unfair it is. Everything is being taken away from me. My friends, my school, my life - all slipping through my fingers like sand.
When I wake up, my parents are sleeping at the foot of the bed, in two very uncomfortable looking armchairs. In my father’s hands is a pamphlet that I can’t quite make out the title of. As I lean in to get a better look, the door slides open. Tomomi walks in with a tray of breakfast food from the cafeteria - a grey spread of corn flakes, toast, and orange juice that looks like it was extruded rather than cooked.
“Morning sleepy-head!” she greets me, setting the tray down on my lap. “Mom and Dad told me to get you some food. So I got you this!”
“Oh, thanks Tomomi. I appreciate that.” I pick up a slice of the cold toast and extend it towards her. “Share some of the spoils?” She shakes her head disapprovingly.
“Nu-uh Yori. You need to build your strength up!”
“Uh-huh. That’s right,” I respond, retracting the toast and taking a bite out of it. “I meed to muild up my strengph.” My parents stir, stretching their arms.
“Mommy, Daddy, Yori’s awake!” Tomomi shares excitedly. “And I gave him the food you asked for!” My mother smiles at her.
“Thanks Tomomi. Hey, would you mind going back to the cafeteria and grabbing me something too?” Tomomi frowns.
“But I just got baaack! And I want to talk to Yori!” she pouts, folding her arms defiantly.
“How about this? If you go and get me some food, you can have my juice?” My sister’s face instantly lights up.
“Promise?”
“Promise.”
“Okay, then. Be back later, Yori!” she says, scampering out the door. For a few moments, I stare silently at my parents, nibbling at the breakfast that I have no appetite for. My father speaks first.
“So, the doctor told us about his visit with you last night. He said you didn’t seem... overly enthusiastic about the plan.” I blink strongly, taking a bite of toast without responding. “So, your mother and I brought you this pamphlet from Yamaku. It’s that high school the doctor had been telling you about. It looks like a great place to go to school. Why don’t you take a look?” He slides me the pamphlet. On the cover, a group of three laughing children: one in a wheelchair, one with a long white cane, and another without arms. Above them, a text box reading “You put the ‘U’ in Yamaku!” I get a sinking feeling in my stomach before flipping through the pages without really looking at them.
“So, what do you think?” my mother asks, hoping for my approval.
“It just feels wrong, Mom. Don’t you think I could at least try to keep going to my school?” She shakes her head, briefly glancing at my father, who shrugs.
“We really think that this would be the best choice for you, Yori. We’d feel better about having you go to school in a place that can cater to your special situation.” There it was again. My “special situation” that everyone so delicately skirted around.
“Do I have any say in this whatsoever?” My father opens his mouth to answer, but is interrupted by tapping on the door. From the other side, a muffled voice.
“Can someone let me in? My hands are full.”
Getting up to open the door, my father simply says “You’ve already been enrolled. The fact of the matter is Yori, your old school wouldn’t give you placement this semester.” I look at my mother, seeking some sort of visual confirmation. She doesn’t look back at me.
“Mom, Dad, I’m sorry I was a jerk. I didn’t know...”
“Yori, please. Don’t worry even a little bit - this is already hard enough for you,” my mother finally says, taking the tray of food from Tomomi. “Just get your rest. We’ll try to settle things with your school. Until then, just try to enjoy your time at Yamaku.”
Tomomi looks at me, then my mother, then back at me. “What are you guys talking about?” Before anyone can respond, my father scoops her up and blows a raspberry on her cheek.
“Nothing, sweetie. Nothing.”
Chapter 1, Part I: See below!
Chapter 1, Part II
Chapter 1, Part III
Chapter 1, Part IV
Chapter 1, Part V
Chapter 1, Part VI
Chapter 2, Part I
Chapter 2, Part II
Chapter 2, Part III
------------------------------------------------------------------------------------------------------------------------
CHAPTER ONE: FAMILY
Amyotrophic lateral sclerosis. It was almost funny - the first headache was just remembering how to spell it. But then came the tests - blood tests, MRI scans, a spinal tap. A seemingly endless series of complicated procedures and formalities that I’d found myself thrown into without any warning.
I’d seen the videos. Read the stories. Everyone told me that they could treat it - that with medication and proper care, they could fight it off. But I know - I’m living on borrowed time. A few decades, tops - and then nothing. First, my toes would shut down, then my feet. Then both my legs. Then it would progress further and further up my body until hitting my vital organs, putting me on life support for the rest of my short life. I wake up with a start in the hospital. The first moments of confusion and disorientation wear off quickly as I sit up. A small bouquet of chrysanthemums lays on the nightstand, along with an envelope crudely addressed to me in purple crayon - “For Yori”. It’s my little sister’s handwriting, and the envelope bulges at its base. Spilling the contents onto my lap, I turn on the lamp just over my left shoulder, examining the spread - two letters, and the same purple crayon that had been used to address the envelope. I unfold the neater of the two letters - crisply folded and written on my family’s stationary.
“Dear Yori, chances are you were asleep when we came by - the doctors said you’d had a long day of procedures. Your friends all miss having you in school, and it hasn’t been easy to stop them short of breaking down the front door! A few girls even came by (your mother didn’t care for them much, but I thought they were lovely! - Dad), looking to check in on you. We’ve told mostly everyone about what the doctors think. Their thoughts and prayers are with you, Yori. It hasn’t been easy for Tomomi. She couldn’t possibly understand the situation; she’s just so young. And she loves you so much. We’ve done our best, but we don’t know how much is getting through. Please be patient with her - it’s not easy for anyone. Your baseball team hasn’t won since you were first admitted, clearly because you haven’t been in the outfield! The doctors think you should be able to leave care in a few days! We’ll have dinner at that Vietnamese restaurant you love so much to celebrate. We love you sweetie, and we’re always thinking of you. Talk to you soon! Love, Mom and Dad”.
I set the letter back on the nightstand. A predictably optimistic letter. My mom and dad were never ones for making me worry, and this would be no exception - they’d tell themselves everything they could to make it all seem alright. They’d tell themselves anything to avoid the unbearable truth - that even in the best case scenario, they would have to bury their son in just a few decades.
I unfold the next letter, written on a piece of printer paper plastered with vibrant illustrations in crayon.
“Dear Yori, How are you? I am good. Mom and Dad say that you are sick. I hope you get better soon. Here is my favorite crayon. I hope it makes you feel better. Don’t put it in a pencil sharpener, my teacher says that’s bad for the sharpener. Love, Tomomi”.
I set it down on the nightstand, on top of the letter my parents sent. Dexterously turning the crayon over between my fingers, I assess the situation. A little sister who doesn’t understand the situation, and two parents who wish they didn’t. Suddenly, the door flies open, momentarily blinding me. A doctor stands in the doorway, clutching a clipboard.
“Mister Kuroki? Hope I didn’t wake you.” I’m too tired to come up with something clever.
“No, no, I was awake. What uh, what can I do for you?”
“Ah,” the doctor begins, tapping the clipboard. “I was just going over your charts. You should be able to go home in a few days.”
“Right, I’d just been reading something like that,” I respond, limply gesturing to the letters on the nightstand.
“Well, while it’s definitely good news, we need to discuss your post-hospital plans.” Post-hospital plans? I hadn’t even considered that anything would change.
“Post-hospital plans?”
“Well, the primary concern is the continuation of your education.”
“I was under the impression that I would head back to school as soon as possible.”
“That’s the plan, but it’s a bit more complicated than that.” His face sours. “Your parents have expressed some... concerns, regarding your return to your current high school.”
“Concerns? What kind of concerns?” I ask, my face contorting in confusion. The doctor briefly averts his eyes.
“Concerns that it may not be the best environment for someone in your condition to attend.”
“Someone in my condition?” The doctor looks gravely at me. His face is stoic - emotionless. The face of a man who has had this conversation a few too many times.
“The fact of the matter is that for a lot of children who develop serious illnesses or physical handicaps, returning to their old school can be traumatic, and detrimental to their education.” My throat is constricting, my face tightening. I know what’s coming, but I’m afraid to hear it. “I recommended you for placement at a high school not too far away from here that’s specially staffed and equipped for people in similar situations.”
“Why wouldn’t I just go back to my old school? Why wouldn’t we just give it a chance?” We. Like I have any say in the matter. “It’s not like everyone would start abandoning me!”
“Yori, your parents just want you to have a normal life.” I clench my fists, doing my best to keep calm.
“A normal life? They want me to have a normal life, so they shuffle me into a school full of people who want to have ‘normal lives’? If they want me to have a normal life, they should let me go back to my friends!” The doctor, sensing my growing anger, does his best to calm me down - visibly regretting coming in so late at night.
“Yori, the truth is that your friends may have a harder time coping with it than you. Nothing’s harder than having to say goodbye to someone every day, and never knowing if that’s the last day you’ll see them. Honestly? If you want to do what’s best for your friends, you’ll go through with this.” I sit, my lungs somewhere between fuming in silence and crying out in frustration. The doctor walks back into the hallway, preparing to close the door. “Yori?”
“What?”
“If you love something, let it go. Yamaku’s not such a bad place, either.” And with that, he slides the door closed. I sit upright for a long time, a wave of emotions rolling over me. Sadness. Frustration. Helplessness. Despite my best intentions, all I can think about is how unfair it is. Everything is being taken away from me. My friends, my school, my life - all slipping through my fingers like sand.
When I wake up, my parents are sleeping at the foot of the bed, in two very uncomfortable looking armchairs. In my father’s hands is a pamphlet that I can’t quite make out the title of. As I lean in to get a better look, the door slides open. Tomomi walks in with a tray of breakfast food from the cafeteria - a grey spread of corn flakes, toast, and orange juice that looks like it was extruded rather than cooked.
“Morning sleepy-head!” she greets me, setting the tray down on my lap. “Mom and Dad told me to get you some food. So I got you this!”
“Oh, thanks Tomomi. I appreciate that.” I pick up a slice of the cold toast and extend it towards her. “Share some of the spoils?” She shakes her head disapprovingly.
“Nu-uh Yori. You need to build your strength up!”
“Uh-huh. That’s right,” I respond, retracting the toast and taking a bite out of it. “I meed to muild up my strengph.” My parents stir, stretching their arms.
“Mommy, Daddy, Yori’s awake!” Tomomi shares excitedly. “And I gave him the food you asked for!” My mother smiles at her.
“Thanks Tomomi. Hey, would you mind going back to the cafeteria and grabbing me something too?” Tomomi frowns.
“But I just got baaack! And I want to talk to Yori!” she pouts, folding her arms defiantly.
“How about this? If you go and get me some food, you can have my juice?” My sister’s face instantly lights up.
“Promise?”
“Promise.”
“Okay, then. Be back later, Yori!” she says, scampering out the door. For a few moments, I stare silently at my parents, nibbling at the breakfast that I have no appetite for. My father speaks first.
“So, the doctor told us about his visit with you last night. He said you didn’t seem... overly enthusiastic about the plan.” I blink strongly, taking a bite of toast without responding. “So, your mother and I brought you this pamphlet from Yamaku. It’s that high school the doctor had been telling you about. It looks like a great place to go to school. Why don’t you take a look?” He slides me the pamphlet. On the cover, a group of three laughing children: one in a wheelchair, one with a long white cane, and another without arms. Above them, a text box reading “You put the ‘U’ in Yamaku!” I get a sinking feeling in my stomach before flipping through the pages without really looking at them.
“So, what do you think?” my mother asks, hoping for my approval.
“It just feels wrong, Mom. Don’t you think I could at least try to keep going to my school?” She shakes her head, briefly glancing at my father, who shrugs.
“We really think that this would be the best choice for you, Yori. We’d feel better about having you go to school in a place that can cater to your special situation.” There it was again. My “special situation” that everyone so delicately skirted around.
“Do I have any say in this whatsoever?” My father opens his mouth to answer, but is interrupted by tapping on the door. From the other side, a muffled voice.
“Can someone let me in? My hands are full.”
Getting up to open the door, my father simply says “You’ve already been enrolled. The fact of the matter is Yori, your old school wouldn’t give you placement this semester.” I look at my mother, seeking some sort of visual confirmation. She doesn’t look back at me.
“Mom, Dad, I’m sorry I was a jerk. I didn’t know...”
“Yori, please. Don’t worry even a little bit - this is already hard enough for you,” my mother finally says, taking the tray of food from Tomomi. “Just get your rest. We’ll try to settle things with your school. Until then, just try to enjoy your time at Yamaku.”
Tomomi looks at me, then my mother, then back at me. “What are you guys talking about?” Before anyone can respond, my father scoops her up and blows a raspberry on her cheek.
“Nothing, sweetie. Nothing.”